Breakfast (BONCON/CITADEL)

Start the day with a nourishing breakfast and a chance to connect with colleagues before sessions begin. It’s the perfect time to fuel up, share ideas over coffee, and set the tone for a day of learning and collaboration.

Opening Session (BONCON/ CITADEL)

We begin the conference with a warm welcome and an overview of what to expect in the days ahead. This session brings everyone together for the first time and sets the direction for our shared focus on outcomes. It is an opportunity to meet the community, highlight key themes, and start the event with energy and purpose.

Plenaries (BONCON/CITADEL)

Our plenary sessions bring together leading voices to explore big ideas, challenge assumptions, and frame key issues in health outcomes research. These talks aim to inspire reflection and set the tone for deeper discussions throughout the conference.

Plenary (BONCON/CITADEL)

Title: Quality of Life from an Indigenous world view

Christopher Mushquash, PhD

Plenary (BONCON/CITADEL)

Title: Data Visualization for Patients, the Public, and Policy Makers

Fateme Rajabiyazdi, PhD

Break / Posters (Hallway)

Take time to recharge with refreshments while exploring an engaging lineup of poster presentations. These informal sessions offer a chance to dive into emerging research and connect directly with presenters in a relaxed atmosphere.

Break / Posters (Hallway)

• Board 1AL Poster 1: Increasing Satisfaction with the Discharge Process Among Clients and Families - Sumathi Parama Thayanithi
• Board 1BL Poster 2: Using PROMIS for Two-Step Screening for Anxiety in Liver Transplant Patients - Mahmoud Norweir
• Board 2AL Poster 3: Patient-Reported Impact of Dermatological Diseases (PRIDD) questionnaire: first evidence of responsiveness and anchor-based minimally important change - Allison FitzGerald
• Board 2BL Poster 4: Translation and linguistic validation of the GENDER-Q into French for use in Canada - Trisia Breitkopf
• Board 3AL Poster 5: Outcomes Of Exercise Training Interventions In People With Chronic Neurological Disorders: A Scoping Review - Sharon Lui
• Board 3BL Poster 6: Acceptability of the GENDER-Q patient-reported outcome measure in gender-affirming care - Sylvie Cornacchi
• Board 4AL Poster 7: Impact of Using Measurement-Based Care in Youth Mental Health Program: A Systematic Review - Bishnu Bajgain
• Board 4BL Poster 8: The association of psychological symptoms and racialized status in patients on kidney replacement treatment - Nyla Nasir

Break / Posters (Hallway)

• Board 5AL Poster 9: The I-Score PROM to screen for barriers to HIV medication adherence: qualitative results of a pilot study in a Montreal clinic (CTNPT039) - Kim Engler
• Board 5BL Poster 10: A Comprehensive Report of Symptom Management for Adult Patients with Cancer Undergoing Treatment in Ontario - Alana Esty
• Board 6AL Poster 11: Women’s Rights to Reproductive Health: A Qualitative Study Using Women of Northern Nigerian Extraction - Eloho Ologan
• Board 6 BL Poster 12: Making Measures Meaningful: Lessons Learned Implementing Patient-Reported Outcome Measures in an Infant and Early Childhood Mental Health Service - Nicole Sheridan
• Board 7AL Poster 13: Physical Capacity and Older Persons Active Living Related Quality of Life (OPALrQOL): Quantity, Quality or Both? - Natasha Hassija
• Board 7BL Poster 14: Racialization and Health-Related Quality of Life among Canadians: Findings from a National Cross-sectional Survey - Nishat Fatima Syeda

Concurrent Oral Sessions (3)

Choose from three concurrent sessions featuring a wide range of topics and presentation formats. These focused gatherings allow for deeper dives into specific areas of interest, with plenty of opportunity for discussion and exchange.

Oral Sessions: Qualitative (BONA VISTA)

1. Silent Burden: Lived Experiences of Tamil- Canadian Caregivers Supporting Individuals with Dementia - Sumathi Parama Thayanithi
2. Beyond Measurement: How First-Person Narratives Deepen our Understanding of Quality of Life in Chronic Pain - Sandra Munro
3. Letting Experience Guide Our Care: A qualitative investigation of patient preferences towards treatment in coronary artery disease - Tomi Adebowale

Oral Sessions: Advanced Modelling (BONCON/ CITADEL)

1. Characterizing heterogeneity in health-related quality of life in coronary artery disease: A longitudinal latent Markov analysis - Henry Ukachukwu Michael
2. Equitable people-centred approaches to Represent Social Determinants of Health Classes in Canada - Jae-Yung Kwon
3. Using Natural Language Processing on the Text of PRO Questions to Identify How Much Older People Live Actively - Nancy E. Mayo
4. What do we mean by “improvement” when considering trajectories of depression? - Kara Schick-Makaroff

Oral Sessions: Children's PROMs (LEOMONT)

1. Validating the Domain-Sorted Kids ITP Tool (KIT 2.0) To Assess Health-Related Quality of Life (HRQOL) in Pediatric ITP - Sara Ukropina
2. Measuring what children like or dislike about their prosthesis: Development of a new PROM to measure children’s satisfaction with their prosthesis - Harpreet Chhina
3. Expanding the Reach of an Indigenous Wellness Measure to Include Younger Children and Older Youth - Atiqa Pirwani
4. Determining Neonatal Outcomes Following In-utero SSRI Exposure: Current State and Future Directions - Christina Cantin

Lunch & Round Tables

Enjoy a relaxed lunch while joining a round table that matches your interests. These small discussions create space for focused conversation, shared problem-solving, and new connections. It is a practical and engaging way to learn from others while taking a break and refuelling for the afternoon sessions.

Lunch & Round Tables (BONCON/ CITADEL)

• Round Table A
  • Layers Data to Support Measurement-Based Care – lessons learned through Indigenous partnerships - Nancy Young
• Round Table B
  • Prioritizing Mental Health for Youth with Physical Health Conditions: Developing an Implementation Approach for Measurement-Based Care - Samantha Anthony
• Round Table C
  • Digital Storytelling and other Arts-based methods for Quality of Life Research: A Roundtable Discussion - Sadia Ahmed

TED Style Talks

These brief, high-energy talks are designed to spark curiosity and inspire innovative thinking. Each presentation delivers a bold idea or insight in ten minutes or less, leaving plenty to reflect on afterward.

TED Style Talks (BONCON/ CITADEL)

1. Are Our Measures Ableist? - Nancy E. Mayo
2. The Importance of 'Patient-Important-Outcomes' in Clinical Trials: How Canada Can Change The World - Nora Fayed
3. From Local Data to National Impact: Building Canada’s First Pediatric Chronic Pain Registry- Christine Lamontagne
4. When the River Tells the Story: Rethinking Outcomes Through the Kawa Model - Aliki Thomas

Concurrent Oral Sessions (3)

Choose from three concurrent sessions featuring a wide range of topics and presentation formats. These focused gatherings allow for deeper dives into specific areas of interest, with plenty of opportunity for discussion and exchange.

Oral Sessions: Older Adults (BONA VISTA)

1. Do Canadian older adults differ in how they interpret and respond to questions about their physical and mental health? - Ava Mehdipour
2. A New Caregiver Reported Measure for Evaluating Dementia Progression and Healthcare Impact - Ayse Kuspinar
3. Unreliability of traditional reliability testing - An example from Older Persons Active Living Related Quality of Life (OPALrQOL) - Ruth Barclay
4. Profiles Contributing to Older Persons Active Living Related Quality of Life (OPALrQOL) - Ezinne Ekediegwu

Oral Sessions: Health Services (BONCON/CITADEL)

1. Patient and Family’s Perspective of Measurement- Based Care in Child and Adolescent Mental Health Service - Bishnu Bajgain
2. Healthcare Navigation in Alberta: how study processes and results from a qualitative, peer-to-peer study can inform equitable healthcare navigation program design, delivery and evaluation - Maria Santana
3. What outcomes matter, and to whom? A multistakeholder Delphi study on key outcomes and indicators for youth services in Quebec - Kathleen MacDonald
4. Sustaining the Backbone: Prioritizing the Health and Well- Being of Nurses in Canada - Oluwagbohunmi A.Awosoga

Oral Sessions: PREMs (LEOMONT)

1. Patient-Centered Quality Indicators among Patients who Leave Hospital Against Medical Advice - Kyle Kemp
2. Maximising the patient voice: A scoping review of secondary use of routinely collected qualitative Patient Reported Experience Measures for research - Teyl Engstrom
3. Evaluation of the real-world implementation of patientreported experience measures (PREMs) across a local health network - Nadejda Nossova
4. Improving the Patient’s Medical Home: Implementing Person-Centred Quality Indicators in Primary Care in Alberta - Matthew Luzentales- Simpson

Break / Posters (Hallway)

Take time to recharge with refreshments while exploring an engaging lineup of poster presentations. These informal sessions offer a chance to dive into emerging research and connect directly with presenters in a relaxed atmosphere.

Break / Posters (Hallway)

• Board 8AL Poster 15: Reducing Administrative Burden in Primary Care: A Digital Solution to Optimize the Use of PROMs and PREMs – Work in Progress - Vanessa Vaillancourt
• Board 8BL Poster 16: Further validation of the NAIL-Q: A responsiveness study - Charlene Rae
• Board 9AL Poster 17: Associations of Early Post-Transplant Patient-Reported Outcomes Measurement Information System (PROMIS) Scores With Subsequent Health Related Quality of Life (HRQoL) in Kidney Transplant Recipients - Maria Xiao
• Board 9BL Poster 18: A Health State Classification System for a Preference-Based Measure in Hip and Knee Osteoarthritis - Ayse Kuspinar
• Board 10AL Poster 19: Mental Health Interventions for Immigrant Women who Experience Intimate Partner Domestic Violence. A scoping review - Rasha Wahid
• Board 10BL Poster 20: Canadian Population Norms for the Patient-Reported Outcome Measurement Information System (PROMIS) 29+2 profile domains and Mental (MHS) and Physical Health Summary (PHS) scores - Mahmoud Noweir
• Board1AR Poster 21: Mapping Pediatric Chronic Pain: Insights into Comorbidities and Caregiver Impact Across Eastern Ontario and Western Quebec Christine Lamontagne - Megan Greenough

Break / Posters (Hallway)

• Board 1BR Poster 22: Psychometric evaluation of the CAregiver REported Outcome Measure for Dementia (CARED): Test-retest reliability and convergent validity - Eunjung Na
• Board 2AR Poster 23: Promoting public and community engagement in the topic of equity, diversity, and inclusion in mental healthcare - Matthew Luzentales-Simpson
• Board 2BR Poster 24: Different Dimensions of Apathy and Motivation in People with Parkinson's Disease (PD) - Louis-François Chénier-André
• Board 3AR Poster 25: Shifting Measurement-based care from “Practice to Culture” in Integrated Youth Services - Skye Barbic
• Board 3BR Poster 26: Hospital Wide Mental Health Safety Planning: A Standardized Form to Improve Outcomes and Experience and Access for Youth with Suicidal Risk - Emily Smith
• Board 4AR Poster 27: Recruiting Hard-to-Reach Research Participants: People Receiving Dialysis with Depressive Symptoms - Kara Schick-Makaroff

Concurrent Oral Sessions (3)

Choose from three concurrent sessions featuring a wide range of topics and presentation formats. These focused gatherings allow for deeper dives into specific areas of interest, with plenty of opportunity for discussion and exchange.

Oral Sessions: Digital (BONA VISTA)

1. Exploring Youth and Young Adult Perspectives on Artificial - Zein Al Abideen Hammad
2. Development of a Digital Application for Evaluating Digital Health Technologies - Vil Vakhitov
3. Challenges of longitudinal analysis in rare genetic ataxias using SCA44 as a model - Andrea H Nemeth
4. The Impact of Electronic Patient- Reported Outcome Measures (ePROMs) on Rehabilitation Outcomes in Stroke and Traumatic Brain Injury patients: A Feasibility Study - Bita Hojjatpanah

Oral Sessions: Health Services (BONCON/CITADEL)

1. Improving communication in primary care using a mixed-methods approach to creating data-driven personas - Roland Simon
2. Shaping Care Through Family Experience: Transforming an Infant and Early Childhood Mental Health Program - Barbara Deren
3. Preliminary results of a core outcome set project to identify essential patient-reported outcome measures for HIV care in Montreal - Kim Engler
4. Implementation of an anti-racism training program for pediatric providers-health workers across Northeastern Ontario health Teams: a multi-methods evidence-based approach - Eloho Ukochovwera Ologan

Oral Sessions: Chronic Conditions (LEOMONT)

1. Patient factors associated with novel NAIL-Q scales in toenail onychomycosis or onychocryptosis: A cross-sectional study and regression analysis - Samantha Keow
2. What Single Assessment Numeric Evaluation score is acceptable to return to sport following anterior cruciate ligament reconstruction? - Sarah Harris
3. Developing a BODY-Q Preference-Based Measure for Weight Loss Treatments - Anne Klassen
4. Association between insecure attachment and illness intrusiveness - Devron J. Swaby

Oral Sessions: Chronic Conditions (LEOMONT)

1. Patient factors associated with novel NAIL-Q scales in toenail onychomycosis or onychocryptosis: A cross-sectional study and regression analysis - Samantha Keow
2. What Single Assessment Numeric Evaluation score is acceptable to return to sport following anterior cruciate ligament reconstruction? - Sarah Harris
3. Developing a BODY-Q Preference-Based Measure for Weight Loss Treatments - Anne Klassen
4. Association between insecure attachment and illness intrusiveness - Devron J. Swaby

Banquet, Game Night & Music

Join us for a special evening that combines great food, lively entertainment, and plenty of laughter. From a festive banquet to games and live music, this night is all about celebrating community and connection.

Breakfast (BONCON/CITADEL)

Start the day with a nourishing breakfast and a chance to connect with colleagues before sessions begin. It’s the perfect time to fuel up, share ideas over coffee, and set the tone for a day of learning and collaboration.

Plenaries (BONCON/CITADEL)

Our plenary sessions bring together leading voices to explore big ideas, challenge assumptions, and frame key issues in health outcomes research. These talks aim to inspire reflection and set the tone for deeper discussions throughout the conference.

Plenary (BONCON/CITADEL)

Title: Missing data handling in patient-reported outcomes data: item fit and aberrant responding

Carl F. Falk, PhD

Plenary (BONCON/CITADEL)

Title: The Potential and Pitfalls of Artificial Intelligence Methods for Analyses of Patient-Reported Outcome Measures.

Lisa Lix, PhD

Break / Posters (Hallway)

Take time to recharge with refreshments while exploring an engaging lineup of poster presentations. These informal sessions offer a chance to dive into emerging research and connect directly with presenters in a relaxed atmosphere.

Break / Posters (Hallway)

• Board 5AR Poster 29: Content Validation of the GENDER-Q Youth in an Expanded Age Range - Noah Jeydon Couto
• Board 5BR Poster 30: A user-centred development and evaluation of stroke for outcome assessment in stroke trials - Kalpana Thapa
• Board 6AR Poster 31: Fostering Resilience in Frontline Nursing: Collegial, Supervisory, and Organizational Supports for Health and Well-Being - Olu Awosoga
• Board 6BR Poster 32: Evaluating PROMs Across General Population and Rehabilitation Settings to Strengthen Patient-Centred and System-Level Care - Zanib Nafees
• Board 7AR Poster 33: Bridging Gaps in Rural Perinatal Opioid Care: How Integrated Models Address Social Determinants of Health - Chloe Hambly Lapointe
• Board 7BR Poster 34: Usability of the Pediatric Patient-Generated Index (pPGI): Insights from Children, Young People, and Clinicians for Esophageal Atresia follow-up - Suganthi Rajasegaran

Break / Posters (Hallway)

• Board 8AR Poster 35: Psychometric Properties of the Strengths and Difficulties Questionnaire Among Children with a Physical Illness - Gurkiran K. Dhuga
• Board 8BR Poster 36: Health-Related Quality of Life in Canadian Kidney Transplant Candidates and Recipients: A Comparison with the General Population - Istvan Mucsi
• Board 9AR Poster 37: Our stories are our strengths”: Indigenous patients, families, and healthcare actors’ experiences of pediatric transplantation - Jai Lin Samantha Anthony
• Board 9BR Poster 38: The Predictive Validity of the Life-Space Assessment Among Canadian Adults - Ayse Kuspinar
• Board 10AR Poster 39: Comparison of the EQ-5D-5L cognition bolt-on and EQ-HWB cognition items: Results from EQ-DAPHNIE data in China and Japan - Hilary Short
• Board 10BR Poster 40: Canadian Population Norms for the Patient Reported Outcomes Measurement Information System Preference Score (PROPr) - Mahmoud Noweir

Concurrent Oral Sessions (3)

Choose from three concurrent sessions featuring a wide range of topics and presentation formats. These focused gatherings allow for deeper dives into specific areas of interest, with plenty of opportunity for discussion and exchange.

Oral Sessions: Health Services (BONA VISTA)

1. Using an argument-based approach to validation to evaluate three PROMs for intensive outpatient child and adolescent mental health services - Erin McCabe
2. Detecting Measurement Bias in PROMs: Insights from Researchers and Methodologists - Muditha Lakmali Bodawatte Gedara
3. APERSU’s Patient Engagement Network model: Spreading awareness of PROMs from patients to patients - Sadia Ahmed

Oral Sessions: Modeling Measurement Challenges (BONCON/ CITADEL)

1. Assessing differential item functioning and its impact using tree-based graded response models in patient-reported outcome measures - Olayinka Arimoro
2. Identifying and explaining variation in emotional well-being measurement bias - Richard Sawatzky
3. Characterizing population heterogeneity due to measurement non-invariance in Coronary Artery Disease - Pegah Noorshargh
4. Evaluating Response Shift in Total Knee Arthroplasty Patients - Ademola Joshua Itiola

Oral Sessions: Children's PROMs (LEOMONT)

1. Pedalling Towards Participation: A Qualitative Exploration of the Impact of Adapted Biking - Jacquie Ripat (on behalf of Minoo Dabiri Golchin)
2. Evaluation and Adaptation of the FACE-Q Patient-Reported Outcome Measure for Ophthalmology Patients - Farheen Khan

Lunch (BONCON/CITADEL)

Enjoy a delicious midday break with fellow attendees—an ideal time to refuel, reflect, and make new connections. Whether you continue a morning conversation or spark a new one, lunch is as much about community as it is about food.

TED Style Talks (BONCON/CITADEL)

These short, high-energy talks are designed to spark curiosity and inspire new ways of thinking. Each presentation delivers a bold idea or insight in ten minutes or less, leaving plenty to reflect on afterward.

TED Style Talks (BONCON/CITADEL)

1. Powering a Learning Health System engine: Using PREMs and PROMs to build and refine collaborative hospital-community substance use healthcare - Noah Spector
2. A Patient Reported Outcome Measure through an Indigenous Lens: The Aaniish Naa Gegii - Blaine Wolfe
3. From Crisis to Collaboration: Developing Frameworks for Integrating Youth Mental Health into Education Systems - Emmy Egulu

Concurrent Oral Sessions (3)

Choose from multiple parallel sessions featuring a wide range of topics and presentation formats. These focused gatherings allow for deeper dives into specific areas of interest, with plenty of opportunity for discussion and exchange.

Oral Sessions: Digital (BONA VISTA)

1. Speaking Their Language: Implementing Voice-to-Voice Translation in Long-Term Care – A Quasi-Experimental Pilot Finding - Abeer Omar
2. A Developing ‘Dr. Calm’: An AI-Driven Chatbot for University Student Mental Health Support - Rasha Wahid
3. Combining machine learning and crowdsourcing for systematic and scoping review citation screening: A derivation and validation study - Dayre McNally

Oral Sessions: Mental Health (BONCON/CITADEL)

1. Depression and anxiety in patients with dermatological conditions: the importance of the multidimensional impact of the disease - Allison FitzGerald
2. Comparing Individualized and Standard Depression Measures: Agreement with Patient Global Ratings of Depression Severity in Ketamine Treatment for Treatment Resistant Depression - Pénélope Coupal
3. Rasch Measurement Theory’s contribution to developing a clinically useful measure of function in Youth Mental Health - Skye Barbic
4. The performance of the EQ-5D- 5L, EQ-HWB, and PROMIS-10 in screening for anxiety and depression in the general adult population in 15 countries - Hilary Short

Oral Sessions: Older Adults (LEOMONT)

1. Minimal Important Change (MIC) in Life-Space Assessment Scores in Canadian Older Adults -Eunjung Na
2. Association between life satisfaction and health behaviours among older adults: a systematic review and meta-analysis - Chiedozie James Alumona
3. Comparative performance of the EQ-5D-5L and PROMIS-10 in the elderly: Data from the EQ-DAPHNIE Project in five countries -Thao D.B. Nguyen

Wrap up & Prizes

We’ll close the conference by celebrating standout contributions and sharing a few final reflections. From student prizes to heartfelt thanks, it’s a moment to recognize the energy, ideas, and community that made this gathering so special.

Homeward Bound

As we part ways, we hope you leave feeling energized, connected, and inspired to carry the momentum forward. Safe travels—and until next time, elbows up, Canada!